“Dad’s acting kind of strange lately,” my brother, mom, and I started saying about five years ago…
My father was diagnosed with Frontal Temporal Dementia (FTD) about a year ago. FTD, similar but different to Alzheimer’s, is a type of dementia. As for my father and others who have dementia, this condition is usually diagnosed by MRI, CT, neuropsychological testing, blood work, and of course, very importantly, by the patient’s family members . FTD is much less common than Alzheimer’s Disease. It affects the frontal temporal region of the brain; hence, the name of the diagnosis. Folks with FTD often experience executive functioning problems (e.g. planning and organizing) and have communication difficulty (e.g. stop talking), poor judgment, and difficulty empathizing. This is what a normal functioning person does every second of the day, without thinking much about it.
We first noticed my father’s “problems” when he crashed his Mercedes into a wall. This was about 5 years ago. Hmmm, dad’s acting kinda strange lately. This is a man who use to fly and land enormous aircrafts during the Vietnam War. My father taught Math and studied Engineering. His premorbid functioning was definitely strong in the area of executive functioning, visual spatial, judgment… So when dad crashed his car, we knew something was up.
Last weekend I had a huge scare and experienced a big learning lesson. My sister-in-law and I, our kids, and grandpa (my dad) decided to go out to lunch at a small local mall near my parents home. My dad tires easily and often mumbles in Vietnamese, “sit down.” I helped to seat my dad on the mall bench to let him rest for a little while. As I am sitting there with him, I see some sales going on in a store. I tell my dad that I am going to quickly run into the store and that he should wait for me, just for a few minutes. As I enter the store, I turn around to check on him. Great, he is still sitting there. A few minutes later, I turn around to check on him again, yep, he is still sitting there. Again, a few minutes go by and I turn around to check on him. He..is…gone from the bench…My heart sinks…
Where did dad go? Where could he have gone? Maybe he went to the restroom! Yes, he’ll be back. I’m sure of it! A few minutes go by. No sign of dad. I start scouring the mini mall looking for a 69 year old, Asian man, who’s shuffling, and is probably looking lost. Crap! Now everyone in the mall looks like a 69 year-old Vietnamese man, and I am getting faint and having difficulty discerning one person from the other now. I slap myself. “Get it together, Mina! You lost your father!” Twenty minutes passed and now I am really worried. I go to mall security. Security and I start scouring the mall. Still, no sign of dad. The security suggests that I call the police because now it has been almost an hour. I can’t believe it has come to this. I can’t believe I lost my father. I am feeling incredibly sad and embarrassed that I could not keep my eye on dad. What if something happened to dad. What if something horrible happened to dad. I have to trust that he is okay and that the police will find him.
Five minutes later, a call comes in to mall security. The police have found a man with the same description walking along the street. I am hoping and praying that this is indeed my father. What the heck is he doing walking along the street?! How did he get out of my sight so quickly?! Another 10 minutes go by and I see my father, shuffling down the mall next to a policeman. I run toward my father and am so relieved that he is found, and appears safe. I look at him and he starts crying uncontrollably. Of course, this makes me feel awful and I too start crying. He’s not able to verbalize his thoughts and feelings to me, but just by looking at his sadness, I know that he wants to say a million things. One thing for sure, I know he wants to say/mumble, “Go home.” I am met with shame.
This was a wake up call.